Establishment of a National ADHD Mental Health Consumer Organisation
I have been appointed as the Executive Chair to oversee the establishment of a united National Attention Deficit Hyperactivity Disorder (ADHD) Consumer Organisation. I am extremely passionate about this and I am inviting you and your organisation to participate in the formation of this national organisation. It is intended that the National ADHD Consumer Forum will not be a service provider. Rather, it will be a facilitator, connecter and enabler to recognise and support effective capabilities that exist within any formal or informal ADHD group.
This communication is to advise you of progress and invite your participation in the collaborative and consultative process to form and operate the organisation.
In 2018 the Federal Minister for Health offered assistance to improve the circumstances surrounding those with ADHD. I am pleased to announce that the Australian Government Department of Health (the Department) is providing limited funding to enable consultation and formation of an organisation to unite, enable and enhance existing ADHD consumer support and advocacy groups as well as formal and informal ADHD consumer organisations to allow their programs to work cooperatively, drive change in awareness of ADHD and provide better outcomes for those affected by ADHD. Participating groups and formal organisations will retain their autonomy. The national organisation’s core purpose is to collaboratively improve the quality of life and wellbeing for all those impacted by ADHD.
The Department agreed to a 3-Phase approach. Phase 1: Establish the organisation; Phase 2: Operate the organisation; and Phase 3: Consolidate and sustain the organisation. A Commonwealth Grant for Phase 1 was executed on 14 May 2020 and work has commenced. All funding arrangements and expenditure will be reported transparently along with monthly progress reporting to the Department. The first progress report is due on 11 June 2020.
The Canberra & Queanbeyan ADHD Support Group (ADDACT) has been appointed as the temporary hosting organisation with accountability to the Department. ADDACT will have no further obligations following completion of Phase 1.
An independent Inaugural Board of Directors has been appointed for early participation and to oversee Phase 1 implementation for the establishment of the organisation, including wide consultation on the organisation’s role, structure, formation and activities, as well as establishing the legal entity. The Inaugural Board members and their Bios can be viewed here.
A project management and implementation team has also been appointed consisting of experienced professionals, with interest and availability to deliver agreed outcomes and direct the work activities by independent professionals. The independent professional contractors include Deloitte (Private), Nexis Accounting, and LanID. All have significant experience in providing professional services to the Australian Not-For-Profit and NGO sector. We ask that you email confirming that you wish to participate in the process of developing the new organisation’s role, structure, formation and activities. Alternatively, you may wish to advise an alternate point of contact and / or that you wish to stay informed but not participate in the consultation process.
We expect the Implementation Team will be sharing details on a programme of consultation and other mechanisms shortly for a process we hope to complete by 31 July 2020.